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Having any illness or disability while traveling adds a bit of difficulty to your journey, each in its own way. With lupus overexertion, stress, medicine, and joint pain are my hurdles. Gladly, I took control of my health and found success in balancing both travel and lupus management. Here are my secrets and lupus travel tips for a memorable travel adventure.

Embrace Routine and Set an Alarm
You’d think after 12+ years of taking this medicine I’d be used to it. Nope, not me. Every day I wake up ready to take over the world with my medicine on the bottom of my to-do list. Since I didn’t have much of a routine when I traveled, it was hard to remember whether or not I’d taken meds that day.
So now I have an alarm set. My phone alarm reminds me at 9:30 pm every day. It’s a good time for me because I’m usually finished eating dinner on a weekday and contemplating bed OR waking up from a late nap on a weekend, ready to take the night by storm.
Wear Sunscreen always
I’m really bad at this. Like REALLY bad. Most people of color grow up being told sunscreen is only for fair-skinned people. We don’t usually burn, don’t usually tan, and don’t notice the difference anyway. Well, I was a tanner.
In college, I went through a phase where I would pour baby oil all over my body and fry my skin like sizzling fried chicken. That is until I went to the West Coast and tried that trick after getting an exfoliating coconut massage. Yeah, I even burned MY LIPS.
Anyway, the sun’s rays can really flare up lupus for some people, and it’ll age your skin faster anyway. When traveling, a lot of tourist attractions are at really high altitudes and will make you even more vulnerable to the sun, even in the winter! The last thing you want is a flare-up and sunburn on your vacation.
Airline Exercises
As a traveler with lupus, I am more susceptible to blood clotting. Sitting on long flights does not help my chances, so I make sure I do a bit of exercise before flying to increase my blood flow. American Airlines’ American Way magazine offers these useful in-flight tips to increase blood circulation in your legs and feet as you sit:
- Ankle Circles (rotate your feet both left and right in circular motions)
- Foot pumps (lean on your heel and move the front of your foot up and down, as if you are pressing/releasing a gas pedal)
- Knee Lifts (keeping your leg bent, lift your thigh and point your knee towards the ceiling)
- Knee to Chest (with your leg bent, lift your thigh towards your chest)
Schedule Rest Days to relieve Lupus fatigue
As I shared in my post about traveling with lupus, I have become dedicated to rest days. Every 2-3 days I make sure I have an itinerary that accommodates my rest day. This means no tours, no partying, and lots of sleep, relaxation, and water.

Probiotics & Hydration
While abroad, the possibility of getting sick is pretty high considering the drastic changes to diet, schedule, and exposure to new bacteria. With an autoimmune disease like lupus, we are even more vulnerable.
I’ve adopted the habit of using probiotics to help my gut flora and reduce chances of traveler’s diarrhea, as well as account for large amounts of water consumption during my trips. I really notice the difference in my daily health when I am well-hydrated and not running to the bathroom around the clock.
Massages
Take advantage of those cheap, sort of shady international massage offers! Just don’t bring anything important other than the price you need to pay. In Cusco, Peru I was offered massages on every corner and thought it was weird.
That is until I couldn’t take my aching body anymore and gave in. Best massage of my life! One hour for 10 bucks. So naturally I went back three more times throughout the duration of my stay. It really helped with my joint pain as I acclimated to the altitude.
Heat therapy
If you have an opportunity to visit hot springs or find a hostel that provides hot water, definitely indulge! I visited sulfur hot springs in Peru for $5 entry and booked AirnBnB listings throughout South America that included hot water showers (a rarity). Heat therapy is great for relaxing muscles, releasing tension, and relieving stress. If you’re in the States, here’s a list of amazing hot springs to visit in the USA.
Say, NO – take a Break!
Sometimes you just have to say no to activities and trust that your travel companion or newfound friends will understand. I’ve learned that the hard way because I don’t know how to say “no”.
I don’t like people viewing me as disabled or “the sick girl” so I push myself way too hard and get really sick, and then everyone looks at me like, “Why didn’t you just stay home and rest? Duh.” Well, now I am getting used to saying “No” and to be honest, the only thing that has changed is that I’m sick less often. Which I am happy with.
How do you manage your lupus or general health abroad?
xo,
Olivia
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Love your blog! I have had Lupus for many years and am about to travel to Hong Kong. Did you find that diet played an important part in managing your Lupus too? I have found that what I ate really helped me manage my illness (plus exercising).
Thank you for reading! I think bad diet mattered at first because it left me sluggish and I didn’t have the energy to go out and breathe fresh air/ experience nature/exercise. I also had issues with sodium years ago due to my lupus being nephritis (kidney). Now, however,I don’t notice diet being directly tied to it in my own experience, but I think it varies per person. I find my diet to be worse in the USA because of the ingredients. Have fun in Hong Kong, I’m dying to go!
Darling!! How about when walking for more than 150 feet becomes a problem? Do any resorts have wheelchairs,or access to them?
The additional problem is how tiring pushing a wheelchair is.
Can I have an Alex?
Many resorts have wheelchair access! I would say, though, that I found smaller boutique hotels and budget-friendly lodging options often lacking in accessible accommodations. Search for chain hotels like hilton and marriott, as well a mid-range to luxe resorts. Check out this blog for really good tips: https://wheelchairtravel.org/
Great article. It took me a while to learn how to manage my Sarcoidosis (very similar to Lupus) while abroad and on those long plane rides. I don’t do the priobotics, I pretty much follow most of what you mentioned. I schedule in small breaks while out and make sure to stay hydrated. I love reading how others manage their conditions while traveling. New subscriber here.
Hydration is so important!! I’m often reminded the hard way. Holy joint pain. Thanks for reading!
Hi Olivia!
I’m extremely excited to read your blog. On my trip to China, the only two things I didn’t do was take probiotics and get a massage. But I managed vey well. I do the ankle exercises even at my desk at work and on my long train commute. Living with Lupus can reek such havoc on one’s life and I’m so happy you are doing well with all your traveling. Take vitamins also to keep your stamina up and ward off viruses.
Be safe. Enjoy life….travel on!
Thank you Vee! I have to get better at taking vitamins– you’re so right! Stay healthy and happy 🙂